Klippel-Feil Syndrome discussion and support. We talk about the symptoms and problems of KFS, but we also have a lot of fun. If you have KFS or are a relative or friend of someone with KFS, please drop in.
I just joined this today (March 12, 2008) and I wonder where all of you live. I live in Seattle, WA with my daughter and we cannot find any doctors who have ever heard of this. Any suggestions?
Oh, I have Type 1 (or type three KFS) with all but one of my c-vertebre fused. I also have other serious spinal deformities, rib deformities and minor facial deformities (nothing really obvious)
Hi, I am 17 years old and I have been struggling with the effects of KFS for my whole life. I am new to this whole support group thing, and I was wondering what this is all about.
